News Items

Question Time

5th September Wolverhampton

We've now had our second Question Time event which was well received by all participants. Click here to see the BBC report from the Event. More details about this event will be available shortly.

 

3rd April Dudley

Our first Question Time event happened on 3rd April; it was attended by nearly 100 people, and unanimously declared to have been a resounding success. This time it was a joint event with Parkinson's UK, marking their Awareness Week, and special guests the High Sheriff of the West Midlands, Dr. Keith Bradshaw, and the Mayor and Mayoress of Dudley, Mohammed Hanif and Zabeda Khanam were in attendance.

On behalf of Parkinson's UK, Dr. Bradshaw made a presentation to Parkinson's volunteer Stephen Williams, who by coincidence is also a volunteer with BCNA. Speakers from Parkinson's UK gave excellent and enlightening presentations.For more information about the award click here

Stephen received the High Sheriff’s Award from Dawn Carr, West Midlands Area Development Manager for Parkinson’s UK.

For the BCNA Question Time our Panel of specialists from Dudley CCG spoke briefly about their work, after which members of the audience discussed what they had heard and then fired questions at the Panel members. Their honest answers may not always have been what the audience hoped to hear, but were much appreciated. "Planning has already begun for the next Question Time event, which will take place in Wolverhampton in early September. Further Question Time events are planned to take place in Walsall and Sandwell at later dates, thus ensuring that all areas of our Black Country are included.

If you would like to be kept informed about this, email us at contact@bcneural.org.uk to be added to our Mailing List.

To download documents and pictures about the event, click here and here.

 

New report from the Neurological Alliance: How has neurology patient experience changed since 2014?

Click here to access the webpage (please note this will open in a new page)

 

Annual Report

Please click here for a copy of our 2016 Annual Report. You will be able to save it to your own computer.

 

Survey

Back in 2012, the MS Society conducted a survey of people across the UK with MS, which provided us with the largest piece of patient-reported data that the UK MS sector had ever collected.  The findings were published in the 2013 report, ‘A lottery of treatment and care’

We conducted the second “My MS My Needs” survey between February and April this year, and have published the result. Click here for the results.

Many questions, including those on access to disease modifying treatments (DMTs) and MS specialists, are the same as 2013 and allow us to compare data to the first survey. We also asked some new questions, based on the changing service landscape.

 

BCNA Neuro Supporter

As someone either directly or indirectly affected by a neurological / neuromuscular condition who better to work with the Black Country Neurological Alliance

Purpose of the role:

To ensure that the feedback & solicited views of people directly or indirectly affected by a neurological / neuromuscular condition within the Black Country are appropriately represented by the BCNA in its dealings and engagement with health and social care networks, clinical commissioning groups (CCGs), healthcare collaborations, working groups, forums and charities.

General Requirements:

• Be committed to the purpose and values of the BCNA
• As felt comfortable attend healthcare meetings and events as an opportunity to feedback to the BCNA on local support services
• Encourage neurological / neuromuscular charities and associated support groups to work with the BCNA to improve health and social care services here in the Black Country Specific Tasks:
• If possible attend your local area BCNA road show / neurological forum
• Provide timely feedback to the BCNA committee for healthcare meetings and events attended
• If possible attend our AGM
• Provide timely out of pocket expense submissions for any agreed BCNA activities

Personal qualities:

• Willingness to contribute as part of a team
• Able to deal with confidential information sensitively and appropriately
• Ability to recognise and respect a diversity of views, attitudes and lifestyles
• Able to contribute to BCNA initiatives / discussions
• Computer skills and access to e-mail desirable but not essential

Personal commitment / desired outcomes:

• Personal agreement on time you wish to commit to the role
• Joint agreement with BCNA on the support you feel comfortable to offer Training and support (provided by BCNA):
• Induction pack and induction session
• Out of pocket expenses
• Ongoing support from BCNA Neuro Champion lead and fellow BCNA committee member(s)

Please click here (poster) and here (leaflet) for more information.

To apply or for more information email us at contact@bcneural.org.uk .